A qualitative study of the psychosocial and health consequences associated with lymphedema among women in the Dominican Republic
Identifieur interne : 007764 ( Main/Exploration ); précédent : 007763; suivant : 007765A qualitative study of the psychosocial and health consequences associated with lymphedema among women in the Dominican Republic
Auteurs : Bobbie Person [États-Unis] ; David Addiss [États-Unis] ; L. Kay Bartholomew [États-Unis] ; Cecilia Meijer [États-Unis] ; Victor Pou [République dominicaine] ; Guillermo Gonzalvez [République dominicaine] ; Bart Van Den Borne [Pays-Bas]Source :
- Acta tropica [ 0001-706X ] ; 2007.
Descripteurs français
- KwdFr :
- Adulte, Adulte d'âge moyen, Animaux, Facteurs socioéconomiques, Femelle, Filariose lymphatique (), Filariose lymphatique (psychologie), Filariose lymphatique (économie), Filariose lymphatique (épidémiologie), Groupes focalisés (), Humains, Maladies endémiques, Qualité de vie, République dominicaine (épidémiologie), Santé des femmes, Sujet âgé.
- MESH :
- psychologie : Filariose lymphatique.
- économie : Filariose lymphatique.
- épidémiologie : Filariose lymphatique, République dominicaine.
- Pascal (Inist)
- Adulte, Adulte d'âge moyen, Animaux, Facteurs socioéconomiques, Femelle, Filariose lymphatique, Groupes focalisés, Humains, Lymphoedème, Filariose lymphatique, Aspect social, Maladies endémiques, Qualité de vie, Santé des femmes, Santé publique, Facteur psychosocial, Morbidité, Complication, Association, Femme, Femelle, République Dominicaine, Médecine tropicale, Sujet âgé.
- Wicri :
- geographic : République dominicaine.
- topic : Santé publique, Association, Femme.
English descriptors
- KwdEn :
- Adult, Aged, Animals, Association, Complication, Dominican Republic, Dominican Republic (epidemiology), Elephantiasis, Filarial (complications), Elephantiasis, Filarial (economics), Elephantiasis, Filarial (epidemiology), Elephantiasis, Filarial (psychology), Endemic Diseases, Female, Focus Groups (methods), Humans, Lymphatic filariasis, Lymphedema, Middle Aged, Morbidity, Psychosocial factor, Public health, Quality of Life, Social aspect, Socioeconomic Factors, Tropical medicine, Woman, Women's Health.
- MESH :
- geographic , epidemiology : Dominican Republic.
- complications : Elephantiasis, Filarial.
- economics : Elephantiasis, Filarial.
- epidemiology : Elephantiasis, Filarial.
- methods : Focus Groups.
- psychology : Elephantiasis, Filarial.
- Adult, Aged, Animals, Endemic Diseases, Female, Humans, Middle Aged, Quality of Life, Socioeconomic Factors, Women's Health.
Abstract
To date, few studies have addressed the sequelae of lymphatic filariasis, a mosquito-transmitted disease, on the quality of life of affected women in the Americas. In this qualitative study, we conducted 28 semi-structured interviews and 3 focus groups of women with lymphedema or elephantiasis of the leg living in filariasis-endemic areas of the Dominican Republic. Women in our study described a spectrum of consequences associated with their lymphedema but physical, functional, and psychological limitations were not always associated with severity of lymphedema. Data suggests that management frameworks need to be expanded to address women's explanatory models of illness, the cultural practices of seeking traditional healers for initial care, psychological distress, coping strategies unique to women, and the practice of self treating with antibiotics without medical supervision. Further research to better understand the depth and breadth of psychological states and coping strategies of women; the health seeking and self-management practices; and the strain on social support networks of women is needed in order to assist health program planners in establishing culturally tailored and gender-specific interventions for Dominican women.
Affiliations:
Links toward previous steps (curation, corpus...)
- to stream PascalFrancis, to step Corpus: 000439
- to stream PascalFrancis, to step Curation: 000521
- to stream PascalFrancis, to step Checkpoint: 000487
- to stream Main, to step Merge: 007931
- to stream PubMed, to step Corpus: 003591
- to stream PubMed, to step Curation: 003591
- to stream PubMed, to step Checkpoint: 003591
- to stream Ncbi, to step Merge: 002805
- to stream Ncbi, to step Curation: 002805
- to stream Ncbi, to step Checkpoint: 002805
- to stream Main, to step Merge: 007505
- to stream Main, to step Curation: 007764
Le document en format XML
<record><TEI><teiHeader><fileDesc><titleStmt><title xml:lang="en" level="a">A qualitative study of the psychosocial and health consequences associated with lymphedema among women in the Dominican Republic</title><author><name sortKey="Person, Bobbie" sort="Person, Bobbie" uniqKey="Person B" first="Bobbie" last="Person">Bobbie Person</name><affiliation wicri:level="2"><inist:fA14 i1="01"><s1>National Center for Prevention, Detection, and Control of Infectious Diseases, Centers for Disease Control and Prevention, 1600 Clifton Road, MS-C14</s1><s2>Atlanta, GA 30333</s2><s3>USA</s3><sZ>1 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Géorgie (États-Unis)</region></placeName></affiliation></author><author><name sortKey="Addiss, David" sort="Addiss, David" uniqKey="Addiss D" first="David" last="Addiss">David Addiss</name><affiliation wicri:level="2"><inist:fA14 i1="02"><s1>Fetzer Institute, 9292 West KL Avenue</s1><s2>Kalamazoo, MI 49009-9398</s2><s3>USA</s3><sZ>2 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Michigan</region></placeName></affiliation></author><author><name sortKey="Bartholomew, L Kay" sort="Bartholomew, L Kay" uniqKey="Bartholomew L" first="L. Kay" last="Bartholomew">L. Kay Bartholomew</name><affiliation wicri:level="2"><inist:fA14 i1="03"><s1>Center for Health Promotion and Prevention Research, School of Public Health, University of Texas Health Science Center at Houston, 7000 Fannin Street, Suite 2572</s1><s2>Houston, TX 77030</s2><s3>USA</s3><sZ>3 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Texas</region></placeName></affiliation></author><author><name sortKey="Meijer, Cecilia" sort="Meijer, Cecilia" uniqKey="Meijer C" first="Cecilia" last="Meijer">Cecilia Meijer</name><affiliation wicri:level="2"><inist:fA14 i1="04"><s1>Coordinating Office for Terrorism Prevention and Emergency Response, Centers for Disease Control and Prevention, 1600 Clifton Road, MS-D-44</s1><s2>Atlanta, GA 30333</s2><s3>USA</s3><sZ>4 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Géorgie (États-Unis)</region></placeName></affiliation></author><author><name sortKey="Pou, Victor" sort="Pou, Victor" uniqKey="Pou V" first="Victor" last="Pou">Victor Pou</name><affiliation wicri:level="1"><inist:fA14 i1="05"><s1>Instituto Dermatologico y Cirugia de Piel Dr. Huberto Bogaert Díaz (DHBD), Federico Velásquez Esq. Albert Thomas, Departamento de Flebologia, Counsultorio 18</s1><s2>Santo Domingo, D.N</s2><s3>DOM</s3><sZ>5 aut.</sZ></inist:fA14><country>République dominicaine</country><wicri:noRegion>Santo Domingo, D.N</wicri:noRegion></affiliation></author><author><name sortKey="Gonzalvez, Guillermo" sort="Gonzalvez, Guillermo" uniqKey="Gonzalvez G" first="Guillermo" last="Gonzalvez">Guillermo Gonzalvez</name><affiliation wicri:level="1"><inist:fA14 i1="06"><s1>Centro Para el Control de Enfermedades Tropicales (CENCET), Ave. Duarte No. 269, Villa Maria</s1><s2>Santo Domingo City</s2><s3>DOM</s3><sZ>6 aut.</sZ></inist:fA14><country>République dominicaine</country><wicri:noRegion>Santo Domingo City</wicri:noRegion></affiliation></author><author><name sortKey="Van Den Borne, Bart" sort="Van Den Borne, Bart" uniqKey="Van Den Borne B" first="Bart" last="Van Den Borne">Bart Van Den Borne</name><affiliation wicri:level="1"><inist:fA14 i1="07"><s1>Universiteit Maastricht, Essenlaan 5</s1><s2>5071 CL Undenhout</s2><s3>NLD</s3><sZ>7 aut.</sZ></inist:fA14><country>Pays-Bas</country><wicri:noRegion>5071 CL Undenhout</wicri:noRegion></affiliation></author></titleStmt><publicationStmt><idno type="wicri:source">INIST</idno><idno type="inist">07-0436161</idno><date when="2007">2007</date><idno type="stanalyst">PASCAL 07-0436161 INIST</idno><idno type="RBID">Pascal:07-0436161</idno><idno type="wicri:Area/PascalFrancis/Corpus">000439</idno><idno type="wicri:Area/PascalFrancis/Curation">000521</idno><idno type="wicri:Area/PascalFrancis/Checkpoint">000487</idno><idno type="wicri:explorRef" wicri:stream="PascalFrancis" wicri:step="Checkpoint">000487</idno><idno type="wicri:doubleKey">0001-706X:2007:Person B:a:qualitative:study</idno><idno type="wicri:Area/Main/Merge">007931</idno><idno type="wicri:source">PubMed</idno><idno type="RBID">pubmed:17638614</idno><idno type="wicri:Area/PubMed/Corpus">003591</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Corpus" wicri:corpus="PubMed">003591</idno><idno type="wicri:Area/PubMed/Curation">003591</idno><idno type="wicri:explorRef" wicri:stream="PubMed" wicri:step="Curation">003591</idno><idno type="wicri:Area/PubMed/Checkpoint">003591</idno><idno type="wicri:explorRef" wicri:stream="Checkpoint" wicri:step="PubMed">003591</idno><idno type="wicri:Area/Ncbi/Merge">002805</idno><idno type="wicri:Area/Ncbi/Curation">002805</idno><idno type="wicri:Area/Ncbi/Checkpoint">002805</idno><idno type="wicri:doubleKey">0001-706X:2007:Person B:a:qualitative:study</idno><idno type="wicri:Area/Main/Merge">007505</idno><idno type="wicri:Area/Main/Curation">007764</idno><idno type="wicri:Area/Main/Exploration">007764</idno></publicationStmt><sourceDesc><biblStruct><analytic><title xml:lang="en" level="a">A qualitative study of the psychosocial and health consequences associated with lymphedema among women in the Dominican Republic</title><author><name sortKey="Person, Bobbie" sort="Person, Bobbie" uniqKey="Person B" first="Bobbie" last="Person">Bobbie Person</name><affiliation wicri:level="2"><inist:fA14 i1="01"><s1>National Center for Prevention, Detection, and Control of Infectious Diseases, Centers for Disease Control and Prevention, 1600 Clifton Road, MS-C14</s1><s2>Atlanta, GA 30333</s2><s3>USA</s3><sZ>1 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Géorgie (États-Unis)</region></placeName></affiliation></author><author><name sortKey="Addiss, David" sort="Addiss, David" uniqKey="Addiss D" first="David" last="Addiss">David Addiss</name><affiliation wicri:level="2"><inist:fA14 i1="02"><s1>Fetzer Institute, 9292 West KL Avenue</s1><s2>Kalamazoo, MI 49009-9398</s2><s3>USA</s3><sZ>2 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Michigan</region></placeName></affiliation></author><author><name sortKey="Bartholomew, L Kay" sort="Bartholomew, L Kay" uniqKey="Bartholomew L" first="L. Kay" last="Bartholomew">L. Kay Bartholomew</name><affiliation wicri:level="2"><inist:fA14 i1="03"><s1>Center for Health Promotion and Prevention Research, School of Public Health, University of Texas Health Science Center at Houston, 7000 Fannin Street, Suite 2572</s1><s2>Houston, TX 77030</s2><s3>USA</s3><sZ>3 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Texas</region></placeName></affiliation></author><author><name sortKey="Meijer, Cecilia" sort="Meijer, Cecilia" uniqKey="Meijer C" first="Cecilia" last="Meijer">Cecilia Meijer</name><affiliation wicri:level="2"><inist:fA14 i1="04"><s1>Coordinating Office for Terrorism Prevention and Emergency Response, Centers for Disease Control and Prevention, 1600 Clifton Road, MS-D-44</s1><s2>Atlanta, GA 30333</s2><s3>USA</s3><sZ>4 aut.</sZ></inist:fA14><country>États-Unis</country><placeName><region type="state">Géorgie (États-Unis)</region></placeName></affiliation></author><author><name sortKey="Pou, Victor" sort="Pou, Victor" uniqKey="Pou V" first="Victor" last="Pou">Victor Pou</name><affiliation wicri:level="1"><inist:fA14 i1="05"><s1>Instituto Dermatologico y Cirugia de Piel Dr. Huberto Bogaert Díaz (DHBD), Federico Velásquez Esq. Albert Thomas, Departamento de Flebologia, Counsultorio 18</s1><s2>Santo Domingo, D.N</s2><s3>DOM</s3><sZ>5 aut.</sZ></inist:fA14><country>République dominicaine</country><wicri:noRegion>Santo Domingo, D.N</wicri:noRegion></affiliation></author><author><name sortKey="Gonzalvez, Guillermo" sort="Gonzalvez, Guillermo" uniqKey="Gonzalvez G" first="Guillermo" last="Gonzalvez">Guillermo Gonzalvez</name><affiliation wicri:level="1"><inist:fA14 i1="06"><s1>Centro Para el Control de Enfermedades Tropicales (CENCET), Ave. Duarte No. 269, Villa Maria</s1><s2>Santo Domingo City</s2><s3>DOM</s3><sZ>6 aut.</sZ></inist:fA14><country>République dominicaine</country><wicri:noRegion>Santo Domingo City</wicri:noRegion></affiliation></author><author><name sortKey="Van Den Borne, Bart" sort="Van Den Borne, Bart" uniqKey="Van Den Borne B" first="Bart" last="Van Den Borne">Bart Van Den Borne</name><affiliation wicri:level="1"><inist:fA14 i1="07"><s1>Universiteit Maastricht, Essenlaan 5</s1><s2>5071 CL Undenhout</s2><s3>NLD</s3><sZ>7 aut.</sZ></inist:fA14><country>Pays-Bas</country><wicri:noRegion>5071 CL Undenhout</wicri:noRegion></affiliation></author></analytic><series><title level="j" type="main">Acta tropica</title><title level="j" type="abbreviated">Acta trop.</title><idno type="ISSN">0001-706X</idno><imprint><date when="2007">2007</date></imprint></series></biblStruct></sourceDesc><seriesStmt><title level="j" type="main">Acta tropica</title><title level="j" type="abbreviated">Acta trop.</title><idno type="ISSN">0001-706X</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Adult</term><term>Aged</term><term>Animals</term><term>Association</term><term>Complication</term><term>Dominican Republic</term><term>Dominican Republic (epidemiology)</term><term>Elephantiasis, Filarial (complications)</term><term>Elephantiasis, Filarial (economics)</term><term>Elephantiasis, Filarial (epidemiology)</term><term>Elephantiasis, Filarial (psychology)</term><term>Endemic Diseases</term><term>Female</term><term>Focus Groups (methods)</term><term>Humans</term><term>Lymphatic filariasis</term><term>Lymphedema</term><term>Middle Aged</term><term>Morbidity</term><term>Psychosocial factor</term><term>Public health</term><term>Quality of Life</term><term>Social aspect</term><term>Socioeconomic Factors</term><term>Tropical medicine</term><term>Woman</term><term>Women's Health</term></keywords><keywords scheme="KwdFr" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Animaux</term><term>Facteurs socioéconomiques</term><term>Femelle</term><term>Filariose lymphatique ()</term><term>Filariose lymphatique (psychologie)</term><term>Filariose lymphatique (économie)</term><term>Filariose lymphatique (épidémiologie)</term><term>Groupes focalisés ()</term><term>Humains</term><term>Maladies endémiques</term><term>Qualité de vie</term><term>République dominicaine (épidémiologie)</term><term>Santé des femmes</term><term>Sujet âgé</term></keywords><keywords scheme="MESH" type="geographic" qualifier="epidemiology" xml:lang="en"><term>Dominican Republic</term></keywords><keywords scheme="MESH" qualifier="complications" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="economics" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="epidemiology" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="methods" xml:lang="en"><term>Focus Groups</term></keywords><keywords scheme="MESH" qualifier="psychologie" xml:lang="fr"><term>Filariose lymphatique</term></keywords><keywords scheme="MESH" qualifier="psychology" xml:lang="en"><term>Elephantiasis, Filarial</term></keywords><keywords scheme="MESH" qualifier="économie" xml:lang="fr"><term>Filariose lymphatique</term></keywords><keywords scheme="MESH" qualifier="épidémiologie" xml:lang="fr"><term>Filariose lymphatique</term><term>République dominicaine</term></keywords><keywords scheme="MESH" xml:lang="en"><term>Adult</term><term>Aged</term><term>Animals</term><term>Endemic Diseases</term><term>Female</term><term>Humans</term><term>Middle Aged</term><term>Quality of Life</term><term>Socioeconomic Factors</term><term>Women's Health</term></keywords><keywords scheme="Pascal" xml:lang="fr"><term>Adulte</term><term>Adulte d'âge moyen</term><term>Animaux</term><term>Facteurs socioéconomiques</term><term>Femelle</term><term>Filariose lymphatique</term><term>Groupes focalisés</term><term>Humains</term><term>Lymphoedème</term><term>Filariose lymphatique</term><term>Aspect social</term><term>Maladies endémiques</term><term>Qualité de vie</term><term>Santé des femmes</term><term>Santé publique</term><term>Facteur psychosocial</term><term>Morbidité</term><term>Complication</term><term>Association</term><term>Femme</term><term>Femelle</term><term>République Dominicaine</term><term>Médecine tropicale</term><term>Sujet âgé</term></keywords><keywords scheme="Wicri" type="geographic" xml:lang="fr"><term>République dominicaine</term></keywords><keywords scheme="Wicri" type="topic" xml:lang="fr"><term>Santé publique</term><term>Association</term><term>Femme</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">To date, few studies have addressed the sequelae of lymphatic filariasis, a mosquito-transmitted disease, on the quality of life of affected women in the Americas. In this qualitative study, we conducted 28 semi-structured interviews and 3 focus groups of women with lymphedema or elephantiasis of the leg living in filariasis-endemic areas of the Dominican Republic. Women in our study described a spectrum of consequences associated with their lymphedema but physical, functional, and psychological limitations were not always associated with severity of lymphedema. Data suggests that management frameworks need to be expanded to address women's explanatory models of illness, the cultural practices of seeking traditional healers for initial care, psychological distress, coping strategies unique to women, and the practice of self treating with antibiotics without medical supervision. Further research to better understand the depth and breadth of psychological states and coping strategies of women; the health seeking and self-management practices; and the strain on social support networks of women is needed in order to assist health program planners in establishing culturally tailored and gender-specific interventions for Dominican women.</div></front></TEI><affiliations><list><country><li>Pays-Bas</li><li>République dominicaine</li><li>États-Unis</li></country><region><li>Géorgie (États-Unis)</li><li>Michigan</li><li>Texas</li></region></list><tree><country name="États-Unis"><region name="Géorgie (États-Unis)"><name sortKey="Person, Bobbie" sort="Person, Bobbie" uniqKey="Person B" first="Bobbie" last="Person">Bobbie Person</name></region><name sortKey="Addiss, David" sort="Addiss, David" uniqKey="Addiss D" first="David" last="Addiss">David Addiss</name><name sortKey="Bartholomew, L Kay" sort="Bartholomew, L Kay" uniqKey="Bartholomew L" first="L. Kay" last="Bartholomew">L. Kay Bartholomew</name><name sortKey="Meijer, Cecilia" sort="Meijer, Cecilia" uniqKey="Meijer C" first="Cecilia" last="Meijer">Cecilia Meijer</name></country><country name="République dominicaine"><noRegion><name sortKey="Pou, Victor" sort="Pou, Victor" uniqKey="Pou V" first="Victor" last="Pou">Victor Pou</name></noRegion><name sortKey="Gonzalvez, Guillermo" sort="Gonzalvez, Guillermo" uniqKey="Gonzalvez G" first="Guillermo" last="Gonzalvez">Guillermo Gonzalvez</name></country><country name="Pays-Bas"><noRegion><name sortKey="Van Den Borne, Bart" sort="Van Den Borne, Bart" uniqKey="Van Den Borne B" first="Bart" last="Van Den Borne">Bart Van Den Borne</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
EXPLOR_STEP=$WICRI_ROOT/Wicri/Sante/explor/LymphedemaV1/Data/Main/Exploration
HfdSelect -h $EXPLOR_STEP/biblio.hfd -nk 007764 | SxmlIndent | more
Ou
HfdSelect -h $EXPLOR_AREA/Data/Main/Exploration/biblio.hfd -nk 007764 | SxmlIndent | more
Pour mettre un lien sur cette page dans le réseau Wicri
{{Explor lien
|wiki= Wicri/Sante
|area= LymphedemaV1
|flux= Main
|étape= Exploration
|type= RBID
|clé= Pascal:07-0436161
|texte= A qualitative study of the psychosocial and health consequences associated with lymphedema among women in the Dominican Republic
}}
| This area was generated with Dilib version V0.6.31. |  |